As mentioned in the previous post, Chris Patterson on Dr. Treon's staff sent a reference to a doctor at the Hackensack Medical Center - Dr. David Siegel. Looking over his CV, he seems to be more focussed on multiple myeloma, although he is a member of the WMCTG (Waldenström's Macroglobulinemia Clinical Trials Group). He doesn't have any trials underway at present, as far as I can tell.
There seems to be very little activity at Sloan-Kettering, and a smattering at Weill-Cornell, both in NYC. It's notable that Chris Patterson (previous post) didn't refer anyone from either of those places.
The IWMF has a link for support groups. There isn't one listed for NJ (which makes me all the more eager to get consultation from someone out of the area), but I emailed the contact for a group in NYC yesterday. So far, no response...
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