Sunday, May 16, 2010

Anxious over Boston Trip

Tonight we're driving up to Boston for a 9AM Monday morning appointment with Dr. Treon.  I haven't let myself get upset over having WM, but now I feel like tomorrow will be a day of reckoning.  First of all, I've found out that my hematologist hasn't positively diagnosed WM, but that is his initial thought.  I heard this from my family doctor, who got a letter from him.  I worried that perhaps it's jumping the gun to go see Treon, but she assured me that it's an appropriate step at this point to get a second opinion.

So now I have to worry about what if it's something else?  It's pretty clearly a bone marrow disease, but there are lots of those.  I'be been reading the IWMF-TALK mailing list pretty regularly, and there are so many other things it could be.  I need to just stay calm and see what tomorrow brings.

The IWMF-TALK list is full of information about different treatment protocols, the disease mechanism, support group meetings, recent research and clinical trials, and personal experiences.  I've thought of a whole bunch of questions for Treon, and need to write them down.

So I expect to clear a lot of things up, but probably generate some new uncertainties tomorrow.  That's what I mean by a "day of reckoning."

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