That was quick!

As previously posted, it looks like Steven Treon might be one of the "top" specialists in Waldenström's Macroglobulinemia.  (It's starting to get easier to type that word - some "muscle memory" is developing.)  He already responded to the email I sent him last night; here's what he said:

We see folks from NJ all the time, so happy to see you. Best for you to call our new patient admin, Karin Anderson (617 632 3823) to arrange for an appointment.  I will cc: her on here too.

With best regards,

Steve Treon

I want to do a little more research first, and need to understand the insurance situation, but I'm pretty sure I'll go visit him.  It's about 4 1/2 hours away, but we're dealing with an incurable disease.