Friday, April 30, 2010

Ongoing question list

I'm going to use this post to collect questions for the hematologist.  First, here's a list from the American Cancer Society:

  • Do you recommend starting treatment now or waiting until later on?
  • What options do I have for treatment of my Waldenstrom macroglobulinemia?
  • What options do I have for reducing symptoms of my Waldenstrom macroglobulinemia?
  • Which chemotherapy drugs do you recommend? Would you compare their effectiveness and side effects to others?
  • Are biologic therapies or stem cell transplantation an option in my situation?
  • What side effects can I expect from my treatment?
  • What should I do to be ready for treatment?
  • Should I get a second opinion?
  • How long will it take me to recover from treatment?
  • When can I go back to work or resume other activities after treatment?
  • What are the chances that my cancer will recur?
  • How long do you think I'll survive?
Now, here is my (growing) list:
  • Who are the experts on this disease?
  • Is Rituxan a "biologic therapy"?
  • Should I consider taking part in a clinical trial?
  • There seems to be some research indicating that apoptosis (cell self-death) therapies exist.  What can you tell me about them?
  • What are the "important" blood numbers?  In particular, what are my Immunoglobulin-M (IgM) and red blood cell count (RBC)?  What's the difference between the hemoglobin (HGB) measure and RBC count?

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